Recently, they met up on the internet (one of the best ways for sick people to connect), to talk about what they have learned, how hard they’ve had to learn it, and making art in the time of illness.ĮVA: OK, so: here we are! I think I want to start with asking a really basic question which is, how are you doing in this moment right now - where are you, and what has your day looked like? Canary in a Coal Mine ran a Kickstarter campaign earlier this year that raised over $200,000, while It’s All In Your Head was a bestselling Kindle Single and selected as one of Amazon’s Best Digital Singles of 2013. And then Eva wrote a memoir, It’s All In Your Head, about her experiences searching for - and failing to find - a diagnosis of her own. Turns out Jen was making a movie, Canary in a Coal Mine, which documented multiple peoples’ experiences with myalgic encephalomyelitis, her diagnosis. Really sick.Įventually, she reached out to Jen. A year and a half after that, Eva got sick. Three years ago, Jen got sick - really (and for a long time, mysteriously) sick. Eva moved first to New York City to work as an architectural journalist, and then to Berkeley, where she got a master’s degree and then invented her own PhD program. After graduating, Jen moved to China and worked as a journalist and then to Cambridge, Mass., where she started a PhD program in Government. Jen Brea and Eva Hagberg met 15 years ago, in college.
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